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Contractures-ectodermal dysplasia-cleft lip/palate syndrome

ORPHA:1484· ICD-10 Q87.8

Definition

A rare ectodermal dysplasia syndrome characterized by severe arthrogryposis, multiple ectodermal dysplasia features, cleft lip/palate, facial dysmorphism, growth deficiency and a moderate delay of psychomotor development. Ectodermal dysplasia manifestations include sparse, brittle and hypopigmented hair, xerosis, multiple nevi, small conical shaped teeth and hypodontia, and facial dysmorphism with blepharophimosis, deep-set eyes and micrognathia.

Prevalence
<1 / 1 000 000
Inheritance
Autosomal recessive, X-linked recessive
Age of onset
Neonatal