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ALDH18A1-related De Barsy syndrome

ORPHA:35664· ICD-10 Q87.8

Definition

A rare, genetic, neurometabolic disease characterized by prenatal and postnatal growth retardation, hypotonia, failure to thrive, large and late-closing fontanel, development delay, cutis laxa, joint laxity, progeroid appearance, and dysmorphic facial features. In addition, corneal opacities, cataracts, myopia, seizures, hyperreflexia and athetoid movements have also been associated.

Prevalence
<1 / 1 000 000
Inheritance
Autosomal recessive, Not applicable
Age of onset
Infancy, Neonatal