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Thin ribs-tubular bones-dysmorphism syndrome

ORPHA:1506· ICD-10 Q87.5

Definition

An extremely rare, lethal, primary bone dysplasia characterized by thin ribs, thin long bones, high-arched palate and facial features of frontal bossing and low-set, posteriorly rotated ears. Bilateral cryptorchidism may be also observed. There have been no further descriptions in the literature since 1990.

Prevalence
<1 / 1 000 000
Age of onset
Neonatal